MedCERTAIN - The future European trustmark for reliable health
information
Executive Summary
Health information on the Internet, through its
popularity and variable quality, provides an ideal testbed domain for the
exploration of tools and techniques to support advanced information management
such as rating and filtering technologies.
MedCERTAIN will establish a fully functional
self- and third-party rating system enabling patients and consumers to filter
harmful health information and to positively identify and select high quality
information. We aim to provide a system allow European citizens to place greater
trust in networked information, exemplified in the domain of health information.
The project will demonstrate how PICS/RDF/XML-based
content rating and filtering technologies can automate and exploit value-adding
resource description services. The proposed technology strategy combines a
pragmatic use of simple existing technologies for data acquisition with a
future-oriented standards policy intended to lead rather than follow the
evolution of definitions for information-mediation services. Through
longstanding involvement with the medical, Internet cataloguing and Web
standardisation communities, the MedCERTAIN consortium can draw upon a broad
range of collaborators, past experience and ongoing research.
MedCERTAIN - a collaborative system for
assessing health information on the web
MedCERTAIN is currently pulling together
academics, industry, consumers, and professional organisations in order to
establish a comprehensive quality management system on the Internet, which
includes a network of hot-lines, support for self-regulation, development of
technical measures and awareness initiatives.
The project follows up from the idea that the
quality of health information and interactive applications on the Internet
cannot and should not be controlled by a central body or authority, but instead
information and applications must be evaluated and be "labelled" in a
collaborative, decentralised, distributed manner (1-3). Labelling means to
provide meta-information, i.e. to provide information about information, which
may be descriptive or evaluative (4). For example, a book review is evaluative
meta-information, while the table of contents is descriptive meta-information.
Within the medCERTAIN project, a technical and
organisational infrastructure is currently being developed, which allows
individuals, organisations, associations, societies and other entities to
digitally label (rate, evaluate, peer-review, give quality seals to...) online
published health information using a standard computer-readable vocabulary
(meta-information).
The medCERTAIN consortium will also create
different levels of certification for publishers of health information on the
web (reaching from simple quality seals indicating a "good standing"
of the site to "gold" quality seals indicating that the site has been
peer-reviewed externally). Websites who want to get a MedCERTAIN certificaton
will have to commit themselves to the Washington Code of eHealth Ethics (6, 7).
A community of trusted raters (join
us here ) will rate
information while they surf the web flagging fraudulent information, or evaluate
(peer-review) information if authors want a "gold" quality seal. (5)
References
1. Eysenbach G, Diepgen TL. Towards quality
management of medical information on the internet: evaluation, labelling, and
filtering of information [see comments]. BMJ. 1998;317(7171):1496-500 [pdf]
[html]
2. Patrick K, Robinson TN, Alemi F, Eng TR.
Policy issues relevant to evaluation of interactive health communication
applications. The Science Panel on Interactive Communication and Health. Am J
Prev Med 1999;16(1):35-42.
3. Gustafson DH, Robinson TN, Ansley D, Adler
L, Brennan PF. Consumers and evaluation of interactive health communication
applications. The Science Panel on Interactive Communication and Health. Am J
Prev Med 1999;16(1):23-9.
4. Eysenbach G, Diepgen TL. Labeling and
filtering of medical information on the Internet. Methods Inf.Med.
1999;38(2):80-8 [full
text ].
5. Eysenbach G. Consumer Health Informatics.
BMJ 2000; 320 (7251) (in
press )
6. Eysenbach G. Towards ethical guidelines for
e-health: JMIR Theme Issue on eHealth Ethics. Journal of Medical Internet
Research 2000;2(1):e7 http://www.symposion.com/jmir/2000/1/e7/
7. e-Health Ethics Initiative. e-Health Ethics
Code. Journal of Medical Internet Research 2000;2(2):e9 <URL: http://www.symposion.com/jmir/2000/2/e9/
MedCERTAIN
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