Good
Electronic Health Record
The Good Electronic Health
Record began when Dr. Alain Maskens, a Belgium Oncologist,
wanted to collect data in primary care and analyse the
records. The work took shape on an Apple II, requiring coding
of terms to conserve space and translation of records. These
two requirements led to an architecture with an individual
file per patient and a sequence of coded terms which were
displayed in the appropriate language - French or Dutch
initially. Alain began to market this record in other
countries in Europe and came to London in 1988.
The Department of General
Practice at St. Bartholomew's Hospital in London had pioneered
computerised primary care records in that country in the late
70's through the work of Professor Mal Salkind. Dr. Sam Heard,
working in that unit since 1983, had established a collective
of inner city practices using ParaDoc, a relational database,
to aid patient care - Dr Dipak Kalra was a key member of this
group. They were particular impressed with Alain's product -
then called Health.one and trialed the record in four of the
practices linked with ParaDoc. Problems soon became apparent
due to the financial dependence in the UK on aggregated data.
It was agreed to pursue a grant from AIM (Advanced Informatics
in Medicine - an EC research organisation) to achieve a common
health record architecture. The initial proposal in 1989 was
not successful, though many links were forged with other key
organisations in Europe.
In 1990, the team began meeting
to make a new bid in the second round of AIM. Sam Heard, with
the support of Alan Bennet from the local FHSA and Professor
Lesley Southgate of the Department of General Practice,
persuaded Professor David Ingram, the first Professor of
Medical Informatics in the UK and based at St. Bartholomew's
Hospital, to come to a planning meeting in Luxemburg. He
agreed but made it quite clear he "would not be able to
lead the project under any circumstances". Fortunately,
on meeting other members of the team he quickly changed his
mind. Other UK based collaborators were SmithKline Beecham, Dr
Jo Milan from the Royal Marsden Hospital, Richard Dixon and Dr
Penny Grubb from Hull University Department of Informatics and
Dr. Stan Shepherd, then at Update Computers. Meanwhile, Alain
Maskens had assembled France Telecom, Dr Daniel Mart from the
Luxembourg Medical Association, the Health.one users group and
Dr Christian Align from the French Red Cross Hospitals. A
former colleague of Alain and Daniel, Dr Benoit Hap involved
his software development company, C2V, and was a key member of
the bid preparation. Drs Helder Machado and Jose Colado from
Instituta Clinica Geral Zona Norte, Portugal were involved in
the 1989 bid and remained staunch supporters. After a hectic
round of grant preparation involving modem file transfers and
all night vigils in Brussels and London the bid was submitted.
The first sign of possible
success was a rather hostile visit to Professor Lesley
Southgate and Sam Heard at St Bartholomew's by a leader of an
alternative bid promising all sorts of collaborative
opportunities with them if their bid was successful. His
reaction to them expressing no interest in this made it clear
that he had heard something about the GEHR proposal. We heard
soon after. So began a three year project to develop a health
record architecture for Europe, 5 million ECUs with many
people involved. All felt the excitement mixed with an
overwhelming sense of responsibility. The work was divided
into three groups - a clinical group to determine the
requirements was led by Sam Heard, an architecture group to
develop the architectural description was led by Alain Maskens
and a Systems group to deal with portability and
comprehensiveness was led by Benoit Hap.
Much happened over the three
years. Sam Heard returned to Australia but remained very
involved - Dipak Kalra took over the clinical group. David
Lloyd, the systems administrator at St Bartholomew's Hospital
took over the systems group - Alain was always there. Key new
faces were Tom Beale, a systems engineer working at the
Marsden Hospital who developed the formal model of the
architecture and Dr Sean Griffiths who developed many of the
clinical requirements through practical research. The
formidable array of deliverables of the project can be found
at the CHIME
website thanks to the dedication of David Lloyd.
Since then the group have been
involved in many of the activities in Europe and Australia to
develop a standard health record architecture. The CHIME group
under David Ingram have become internationally recognised for
their work in the area - Dipak Kalra and David Lloyd are still
central to their efforts. They have been involved in the
SYNAPSES project and are leading the EHRA-SupA project for
AIM. SmithKline Beecham have invested in Health Data
Management Partners and the Health.one product. Tom Beale and
Sam Heard have been developing the Ocean Kernel, an
implementation of GEHR as middleware for health applications.
They have been working with Peter Schloeffel, David Rowed and
others to get acceptance of this approach in Australia.
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